Living with Scleroderma

The following Scleroderma Educational Program was developed by behavioral psychologist Dr. Jennifer Haythornthwaite and Johns Hopkins Scleroderma Center director Dr. Fredrick Wigley to help patients learn about the physiological and psychological effects of scleroderma.

All chapters are in PDF format. Adobe Acrobat is required for use.
Scleroderma Educational Program

  1. Introduction
  2. Raynaud’s Syndrome: Finger and Skin Care
  3. Pain & Fatigue
  4. Gastrointestinal Tract
  5. Living with Scleroderma
  6. Psychological Impact of Scleroderma
  7. Heart, Lungs & Kidneys
  8. Alternative/Complementary Therapies for Scleroderma